Andrew and I were up extra early this morning. We had to make the hour trek south so that he could get his echocardiogram. His sleep doctor wanted to be sure that his heart was ok. Obstructive Sleep Apnea can cause big heart problems, and since his apnea is severe, she wanted him checked out.
He wasn’t too happy to be up at 5:30am, but he did fall back asleep on the way down. I knew when he woke up he’d be hungry and I gave myself plenty of time to stop to grab him something to eat before the test. He sat on my lap in the parking garage eating McDonald’s hotcakes until it was time to go in.
Anytime I have every had to have some type of test done, I am usually waiting in the waiting room for a bit before they call me back. I was surprised that we barely had time to sit down and they called us back to the prep room. There, they weighed and measured him and let me finish filling out paperwork. It was less than 5 minutes and they came and took us back to the echocardiogram room.
When we first got in the room, Andrew started to cry a bit, but once he was laying down, he was ok. The technician placed three sensors on him and grabbed the ultrasound wand. She told me that the test would take about 45 minutes. That was the first time I was worried about how he would do.
Andrew is not our “sit comfortably for 45 minutes” kid. He is always on the go! I was glad I remembered to put some toys for him in the diaper bag. I didn’t need the toys right away, as he was intrigued by the ultrasound screen.
Then, as you can see in the photo above, he became fascinated by the cord to the wand. He kept grabbing it and shaking it. I tried to redirect him with toys and such, but he loves playing with cords! I’m surprised with all the movement she was able to get any type of good images, but she did.
Before she let us go, she said she was going to have the cardiologist take a look to be sure they had everything they needed. After a few minutes, she said that all looked good and we were sent home.
The biggest surprise of the day was the fact that the ordering doctor’s office called us this afternoon with the results! That has got to be a record! I have never had test results come back that fast before. We were relieved to hear that everything looks normal and the apnea did not do any kind of damage to his heart.
We’ve had so much going on, it is nice to have one worry lifted from our plate!
Andrew had his surgery today. You may remember his sleep study showed severe sleep apnea. A diagnosis of laryngomalacia was given and today the surgery was to correct that.
Going in we knew that there would be at least one surgery for sure and a list of possible others. The possibles would be assessed after a scope of the airway was done. The doc was unclear as to whether the tonsils and adenoids needed to come out. That was one of the possible “others.”
We had to be up very early to make the trek down to the hospital. I really never understood why they tell you to be there so early. We had a 7:30 arrival for a 9:30 surgery, which was moved to 9:45, then 10, and I think we finally were back in the OR by 10:30.
Sam’s aunt came over and watched Ella for us while we were there. We were very grateful for her coming at the last minute. Some other family issues came up that forced us to change plans.
We had smooth sailing all the way to the hospital. Once we were checked in, the waiting began. There were plenty of people in the waiting room – kids and adults.
Andrew is not a patient kid. He likes to be walking or running or exploring. He is not going to sit still. So, Sam and I took him and walked around the halls a bit while we waited to get to the prep room.
Once in the prep room, he was gowned up and the Child Life folks brought in some toys. They kept him occupied for a short time, but he hated being confined to the room.
They told us that there were some wagons/cars in the hallway and eventually I walked him through the halls.
By this time he was exhausted from the early morning wake up and he fell asleep on Sam.
I was the one who went with him to the OR, so they could put him under. They brought me one of those white “bunny suit” gowns to wear in the OR. They did this for me when Ella had her ear tubes, too. This time, thanks to my 40+ pound weight loss, I could actually zip it up!!
Sam passed him to me so I could take him down. I had hoped that since he was sleeping, they could just put the mask on him and he’d stay asleep. He didn’t. He woke up and I held him while they put him under.
After the scope, the doc came out to say they were just going to do the one surgery because the tonsils and adenoids looked ok. After that surgery, he came back out and asked if he choked on his food or drink. Lately, he had been doing this, so we said yes. He found a small abnormality that he was able to fix while he was still under.
The doc came out afterward to say that all went good and it would be about 30-40 minutes before we could go back to see him. While we waited Sam got a text saying that he was doing well in the recovery room. We continued to wait.
Finally, they let us back. If you have never seen a child waking up from anesthesia, it is not pretty. When Ella woke from her “twilight” she was head butting, fighting and screaming like we have never seen her before. Andrew was similar, but he was mostly squirming and screaming. It was not easy to see him that way. Nothing seemed to calm him down.
They wasted no time getting us up to our room, which was already set for us. The nurses on the floor were a bit surprised that they didn’t keep us down there longer, but we all rolled with it. Andrew eventually fell asleep on Sam and that extra sleep helped him a lot.
Sam noticed that they must have had a difficult time getting an IV. He had two pokes in both hands, and the IV was in his foot. Not that it mattered much – he pulled the IV out when he woke up. We thought they were going to have to put a new one in, but the nurse said if we could get him to drink some fluids, we may not have to do that.
Well, the poor kid hadn’t had anything to eat or drink since 9pm the night before. So when he was handed a sippy cup, he drank from it. When handed a popsicle, he chowed it down. When he was offered Jello, he ate it like it was a gourmet meal! No need for another IV!!
He had three EKG leads on him to monitor his heart. He also had a pulse oximeter on his toe to watch oxygen levels. These basically had him tied to the room. He didn’t want to just sit. He didn’t want the equipment on him either. He promptly starting ripping those things off. We pressed the nurse call button and waited for 30 minutes. Finally we just took him to the hallways to walk.
He squirmed in our arms, so we let him walk on his own, which led to him running through the halls and into rooms. Sam and I got our steps in today. It had to be a sight watching us chase him around!!
We’re glad the surgery is over and now we wait to see if this helps with his sleep. Next step is his echocardiogram next week to see if the apnea has caused any damage to his heart. We pray that all is ok.
It is truly hard to believe that Andrew turned 1 today! It seems like just yesterday we were bringing him home from the hospital. Yet here we are one year later. A lot has transpired in 365 days.
For new followers to the blog, you can relive all the excitement of his delivery and birthday here:
He didn’t go to bed any later than normal last night, but he slept longer than Ella today, which is not the norm. Ella was up and playing in her crib and I got up to get her. We came back to my room where Andrew was still sleeping. As much as she tries to whisper, every now and then she forgets and just gets loud. When I reminded her that it was his birthday, she screamed with excitement … and of course, woke him up.
When Sam got home from work, we whipped up some breakfast and had some well deserved family time. We snapped a few first birthday photos and then got ready for a day at the park. It was just beautiful today with temperatures up near 70. The sun made it feel a whole lot warmer.
We drove through and grabbed lunch and brought it to the park for a picnic lunch. There is a small park about 20 minutes away and it was just perfect. There was a playground with playscape and swings and a pavilion with picnic tables where we ate. There is a trail that you can walk with a small creek and fall colors.
Sam and Andrew explored the tennis courts and playground while I sat with Ella as she finished her lunch. When she was finished, we walked over to them. Sam asked if Ella wanted to show me where she had seen some ducks the last time they were there. She said she’d rather play on the playground, so Andrew and I took a walk over.
There is a little bridge that overlooks the creek and he loved just walking on it and looking down at the creek.
We were at the park for quite a while enjoying the day. We didn’t leave until it was close to nap time. Andrew wound up falling asleep in the car, which worked out because Sam wanted to stop and pick up some balloons for him. When we got home, Sam wanted to take a short nap before dinner.
Her mom stopped by to drop off Andrew’s birthday gift and brought their dog Toodles! We all love that dog! The kids loved that she was here and we all went outside and ran around with her. I wish I had gotten some pictures of that!
We had planned on making a chicken and rice dish for dinner, but I neglected to pull chicken out to thaw, so I wound up running to the store and picking up a rotisserie chicken. We made some green beans and mac and cheese to go with it.
After dinner, Andrew opened his birthday gifts and played with his new Little People School Bus before it was time for cake. We sang Happy Birthday and we gave him his cake.
Unlike the day of his cake smash pictures, this time, Andrew REALLY chowed down on this cake!!
It was very fun to watch. He just kept grabbing chunks of cake and stuffing his face. I swear, he ate 3/4 of that cake! I’m surprised he fell asleep tonight after eating all that sugar!!
He snuggled up with mommy and fell asleep on her tonight. It was just beautiful. Sam mentioned to me last night, she never really understood just how different it is in regard to the mother/son bond. She loved them both the same, but that bond is a little different. I explained that I totally understood what she was saying because I feel the same way with Ella. That daddy/daughter bond is really special.
Sam, Ella, and the birthday boy are all asleep as I write this. I think back over the last year and remember so many wonderful memories. He certainly has given us a run for our money. Plenty of after hours urgent care visits, a few months with his helmet, fracture of his foot, and all kinds of other things.
His sleep study showed he had sever sleep apnea. He was diagnosed with Laryngomalacia, which is some extra tissue on the larynx which can cause apnea and other issues. He goes in for surgery on Thursday to correct this. His sleep doc is also worried about whether or not the apnea caused some heart issues, so next week we have to go for an echocardiogram for him. We’re praying that all goes well with the surgery and the echo.
Before he has surgery, he had to get a COVID test. I had to take him in for it and I was totally prepared for a lot of crying. I just knew that it was going to be awful for him to be swabbed. The nurse came in, swabbed him, he made a face and there were no tears! I literally snapped this picture like 20 seconds after the swab.
What a blessing he is to us. As I said on Facebook today:
One year. 365 days. What an amazing trip around the sun it has been for our Andrew Joseph! He is unique and wonderful in so many ways!
This amazing little guy has brought even more happiness to our home. His bright blue eyes light up the room. His smile is contagious. His laughter is joyful noise.
His happy dance makes us all giggle with delight. He is a good little brother, even though Ella has said that he “drives me crazy!”. I have no doubt these two will be best friends. Thank you, God, for allowing me to be “dad” to these two amazing kids!!
Happy birthday, AJ! Thank you for a wonderful year of memories and milestones. We can’t wait to see what the years ahead will bring….
I love you, son.
Sam posted this:
Andrew Joseph-
Today you are ONE! This momma might be in a bit of denial that you aren’t my tiny baby anymore. Even though you are my second baby, you have definitely taught me how to be a momma in a whole new way. You taught me to listen to my momma gut when something isn’t right. You have taught me to fight for answers and pray harder then ever.
Andrew you are fierce and determined! You will not let anything stop you. Your sister might be bigger but you have no issues pulling her to the floor by her hair if it means getting your toy back. You will find a way to get to whatever you want. Even if it isn’t always the safest. There is a reason we call you Bamm Bamm.
You are brilliant! There is not a single gate, or baby proof tab or lock that you haven’t mastered. All it takes is one time of you watching and you know how to do it.
You are so loving! You have always been busy, but you are the first to always snuggle your momma. You still have yet to ever nap somewhere that isn’t in my arms and 99% of the time that is where you are all night too. You fall asleep with my lips on your forehead every single night. And it is secretly my favorite part of the day.
You have the best smile and the brightest eyes and we love you more than you know! Happy Birthday Sweet Boy!
I have said it before, but it is worth repeating – I am a truly blessed man.
About 5 or 6 years ago, I started feeling these little “flutters” in my heart. I went in to the doctor, they made me wear a holter monitor. It showed some PVC’s and such. That led to an echocardiogram. I was then told I needed a sleep study to find out if I have Obstructive Sleep Apnea (which I do). I told them I already use CPAP and they said, “Good” and adjusted some of my meds. The flutter went away.
Fast forward to about 6 weeks ago. The flutter returned. So I went back to the doctor and in one of those rare occurrences, my heart actually fluttered while she was listening to my heart. (There is nothing worse than going in and saying something is happening and then having it NOT happen while you are there!) She ordered yet another echocardiogram (which I go to next week) and another monitor. This time, though, its very different.
Instead of wearing this big bulky holter monitor, I am wearing a “Zio Patch”. I have to wear it for two weeks, and wonder if its going to stay on. It’s actually very cool. It just sticks to my chest.
I wish my chest looked like this, but it doesn’t. LOL. I had to shave off a bunch of chest hair and scrub it with this sandpaper-like pad. Then alcohol wipes (FEEL THE BURN!) four times and apply the monitor. Now it is supposed to sit there for two weeks. Any time I feel a flutter or any type of lightheadedness, pain, or other symptom, I push the button and log into the app on my phone and explain what I felt.
My biggest fear is that it won’t happen while the monitor is running. Worrying about that was stupid, because sure enough, I started having flutters within an hour of having it on. With this particular monitor, I hope I put it on right so they actually can read the data! I was the one who had to position it, unlike the holter where a tech placed all the leads. I did what the pictures showed me, so fingers crossed that it is in the right spot.
I will follow up with the doc after the two week monitoring period and find out what the scoop is. Hopefully, it’s just a simple tweak in medication or stress (gee, I’m not sure what could possibly be stressing me out!). Actually, hopefully it’s nothing! We’ll see.
In the words of Herman’s Hermits …. “Baby, baby, can’t you hear my heartbeat?!”
Various Ramblings of a Nostalgic Italian 