Friday Catch Up

Despite having been able to sit and get a blog or two up this week, it has been a busy one and I thought I would let you know what’s been going on. As with most weeks, we’ve rode the emotional roller coaster.

Funny

We ran out of coffee creamer this week. Andrew wanted to go to the store with me to pick some up. I got him out of the car and put him in the cart. As we made our way into the store, I saw his eyes widen. He saw something behind me, so I turned around. There, in a shabby Santa suit was some guy obviously going to play Santa somewhere. 

Andrew never saw the jeans that he had on under the Santa pants, all he knew was that Santa was following us. The guy saw him and said, “I’ll see you Christmas Eve!” and walked to the ATM in the lobby to grab cash. This made me chuckle. Of all the people who aren’t hurting for money this month, it’s Santa! 

Andrew ran in the house with the coffee creamer and told Ella and mommy who he saw! I wasn’t quick enough to get a picture. Although a picture of the jeans under the Santa pants would have been funny.

Testing – Testing

We continue to take Andrew to tests to rule out things. Since his diagnosis of mild Cerebral Palsy, we’re doing everything we can to get him what he needs. We’ve been waiting for 6 weeks for his leg braces to arrive. These will help him stop toe-walking.

Sleep study # 5 happened. Once again, I got to hook him up. Wish the results had been better, but he still has sleep apnea. Looks like we’re going to be getting him back on CPAP. The results of this test is among many others that will be discussed next week with his neurologist.

Yesterday, we were up at the butt crack of dawn to get him to his MRI. The neurologist was pretty sure that it will be unremarkable, but wanted it done as a precaution. We should have results by Monday. 

He had to be sedated for the procedure. It always breaks my heart to see my kids come out of anesthesia. All went well and he slept on the way home. Once he was awake, he was pretty much back to himself.

The appointment with the neurologist will be a long one, but hopefully, we’ll walk out of there with a solid plan of action.

This week’s “Awwww” moment

I have a pocket Bible that I bought for when my son used to come over. There was a time where we would do a Bible study together. Since he hasn’t been over in sometime, the Bible sat in the room we turned into a play room. Ella knows that it is the B-I-B-L-E (“… yes, that’s the book for me!”). She calls it her “Jesus Book,” and who am I to correct her?!

One morning she came out of her bedroom and curled up on the chair in the living room. ”Daddy, I’m just going to read from my Jesus book, until breakfast…” 

This girl! What a blessing my children are!

Elfin’ Around

I added that Snapchat app a long time ago when my boys were using it. One thing I love to do is look at the filters on it with the kids. They love when it makes them look silly. This week, the “elf” filter is back!

They get a kick out of that!

Speaking of Elves …

Last night, we made sure to put the kids in pajamas that were stained. Why? Well, we had their Elf on the Shelf (Twinkles) go in and cut their jammies. I went in and cut one of the legs of Ella’s off and both of the legs from Andrew’s. 

When Andrew woke up, he said, “Twinkles cut my pants!” This was before he even saw Twinkles, who was sitting in the Christmas Tree with the scissors and the pieces of their PJ’s (using them as a blanket). Andrew ran in and woke her up yelling that “Twinkles had scissors! She cut your pants!” Ella wasn’t sure what to make of that and walked out to the living room rubbing the sleep out of her eyes. She couldn’t believe it!

Only a few more days to try to come up with “elf” ideas!

Have a great weekend!